Fort Wayne Boy Recovering After Rare Brain Disorder Leaves Him With Half a Brain

After months of seizures and uncertainty, 5-year-old Beckett Murray is showing signs of healing following a radical surgery few children ever undergo.

Five months ago, Beckett Murray was a happy, talkative little boy from Fort Wayne, Indiana. Today, he’s learning how to walk, talk, and even smile again — with only half his brain.

Doctors diagnosed Beckett with a rare condition called Rasmussen’s encephalitis. The only known treatment? A hemispherectomy — a surgery that disconnects or removes one hemisphere of the brain. It sounds impossible. But for Beckett, it was the only way to live.

Seizures, Confusion, and a Long Road to Answers

It all started in December. Out of nowhere, Beckett had his first seizure. Then came another. And another.

At first, doctors suspected epilepsy. A common, treatable condition. But his seizures didn’t respond to medication. They got worse — more frequent, more violent.

His family was desperate for clarity. They drove to hospital after hospital, hoping someone would see what others missed.

Eventually, they landed in Louisville, Kentucky. There, pediatric neurologist Dr. Marie Clements gave them a diagnosis no parent wants to hear: Rasmussen’s encephalitis.

“This disease is extremely rare,” Dr. Clements explained. “We maybe see a few cases across the country each year.”

fort wayne boy rasmussen encephalitis recovery hospital rehab

A Surgery Few Would Ever Consider

There’s no cure for Rasmussen’s encephalitis. The inflammation attacks one side of the brain, causing seizures, memory loss, and paralysis. Left untreated, it can be fatal.

That left only one option — a hemispherectomy.

Beckett’s parents, Audrey and Jake, were stunned. It sounded medieval. Take out half his brain?

But the doctors were clear. It was the only way to stop the disease from spreading. And, remarkably, children’s brains can adapt. The healthy hemisphere can take over.

So they flew to Philadelphia, where surgeons at a specialized children’s hospital prepared for the life-changing operation.

The procedure took hours. The emotional toll? Immeasurable.

But when Beckett woke up, something was different. The seizures had stopped.

Learning Life All Over Again

The road didn’t get easier after surgery. It got harder.

Beckett was flown to Grand Rapids, Michigan, for intensive rehabilitation. He had to start from scratch — like a toddler again.

One week he was re-learning how to lift his arms. The next, he was trying to form full sentences.

There were setbacks, sure. But there were also wins. Big ones.

Audrey, his mother, told WZZM, “He is a fighter. It really has been unbelievable.”

And it has. Every inch of progress feels like a mile.

What Exactly Is Rasmussen’s Encephalitis?

The disease is obscure, and many have never heard of it. Here’s a quick breakdown.

  • Name: Rasmussen’s encephalitis

  • Who it affects: Mostly children, typically under 10

  • Symptoms: Frequent seizures, cognitive decline, paralysis on one side

  • Cause: Still unknown, though suspected to be autoimmune

  • Treatment: Hemispherectomy is the most effective intervention

Doctors estimate that only 2 to 3 cases per 10 million people are diagnosed with the condition each year.

That makes Beckett one of the rarest patients in the country.

How Is It Possible to Live With Half a Brain?

It sounds impossible. But young brains are remarkably adaptable — especially before age 10.

In children like Beckett, one hemisphere can gradually assume many of the functions of the other. Speech, memory, and movement can return — although often with limitations.

“We see amazing plasticity in kids this age,” said Dr. Clements. “It’s like the brain rewires itself. It doesn’t work perfectly, but it works.”

Beckett may struggle with coordination and fine motor skills. He may have lifelong challenges. But he’s alive. And he’s smiling.

One therapist said, “Every time he takes a step, he proves what we thought was impossible.”

A Community Rallies Behind Beckett

Back home in Fort Wayne, people are watching Beckett’s recovery like it’s their own family.

Neighbors have organized fundraisers. Classmates made cards and posters. Strangers have donated to help cover travel and medical costs.

Local businesses even held a “Beckett Strong” day — with proceeds from coffee shops and boutiques going to his GoFundMe.

The outpouring caught his parents off guard.

“We just felt so alone at first,” said Audrey. “But now, we feel like the whole town is behind him.”

Here’s what local support has looked like:

Support Type Description
GoFundMe donations Over $60,000 raised in 6 weeks
Local school support Toy drives and prayer circles held weekly
Small business events Portion of sales donated across the county
Online community Thousands sharing Beckett’s story

Beckett’s story has spread far beyond Indiana. Messages of encouragement have come in from California, Canada — even Australia.

A Story That’s Still Being Written

Beckett isn’t done healing. Far from it.

But every day brings something new. A laugh. A lifted hand. A few more words. Moments that once seemed gone for good.

“We believe God has truly performed a miracle,” Audrey told WZZM.

Maybe He has. Or maybe it’s just Beckett — stubborn, joyful, unbreakable Beckett — doing what doctors weren’t sure was possible.

Learning to live again. One tiny, mighty step at a time.

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